Fundraiser for Baby Nathan to fight rare genetic condition


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BAKERSFIELD, Calif. (KGET) — 3 a long time ago, 17 Information released you to newborn Nathan Aguirre who was diagnosed with a scarce genetic condition with no regarded procedure or remedy.

On Sunday, a couple of compact Bakersfield firms arranged a fundraiser to Aguirre struggle back versus this illness.

It could just seem like a normal fundraiser to support a regional spouse and children in need but it’s considerably extra than that. It is about informing the neighborhood about a unusual genetic disease impacting 3-year-aged Nathan Aguirre referred to as Cutis Laxa Style 3.

It causes seizures, muscle spasms, and cataracts and there are no regarded treatments.

“Primarily raising awareness, that’s all I care about,” Nathan’s Father Armando Martinez mentioned. “Letting people today know that this sickness is horrible, and I wouldn’t want to want it on any one.”

Nathan’s spouse and children has been doing work tirelessly to assistance him.

“When you have a unique demands child there is just no time off at all,” Brenda Corona the host of the fundraiser claimed. “It can take a village to elevate a little one, so it usually takes even far more to raise a child with specific needs.”

The Nationwide Organization for Unusual Issues claims Cutis Laxa Style 3 is extremely uncommon, impacting only an estimated 400 family members around the world.

Nathan’s moms and dads still left their work to treatment for him full-time. That’s exactly where this fundraiser will come in. Nearby firms joining forces to aid the family members and distribute recognition.

“We want to share toddler Nathan’s story,” Corona said. “We want to deliver them with support and the assistance that they can get from us to make it simpler and to make it far more comfortable for infant Nathan.”

Nathan’s parents have been preventing a hard battle in opposition to this disorder but they said they’ve never ever misplaced hope.

“Honestly, all we can do is just care for him, adore him, mainly because I know this ailment is not likely to go away anytime quickly all we can do is just love and treatment for him proper now,” Martinez reported.

If you’d like to donate to aid Nathan Aguirre’s household, you can observe this url to their GoFundMe.